Where in the World is Elisabeth, the Tender Foodie?

A Note from a Tender Friend

Hi There!

My name is Sue Chaitin, a friend of the Tender Foodie, Elisabeth Veltman. Some of you know her as "Beth." You may have noticed that there haven't been many posts on this blog for awhile, and there is a reason for that. The video above is a clip from Elisabeth's past life as an opera singer. It was her last concert. The story below is about what has happened to her since then, and why we all need to become more educated about it. 

The Tender Foodie, was the start of a larger, unique business plan to help people navigate the increasingly complex road of food and disease - starting with celiac disease and multiple food allergies, and then expanding into other un-researched, but growing health issues which seem to inter-relate. Behind the blog was a business plan for "The Tender Palate" to help us more quickly get the information we need about health, exercise and the immune system, and food (like this recipe for Old Beau Steaks), and to speed up the healing journey so we all can thrive. She had to stop these plans for health reasons of her own, and before this vision was realized. She also hadn't made her personal story public, because she wanted this blog to be about the rare and wonderful experts in each area, not her specific issues alone.  She also wanted to do it without advertising, so the focus could be as objective as possible.

But now she needs our help. Here is Elisabeth's story, as written on a Go Fund Me page that I set up for her. It also has a video of her singing in her last concert. This was the first time I heard her sing, and I was absolutely floored.

I hope you will find the story helpful, and if you are able and moved by it, or have appreciated the information in this blog over the past few years, help her with some overwhelming medical expenses -- and bring her back to life.

She has told me that she will start blogging about her experience and what she is learning soon, to help thank those who are being so generous to help her. Since she can't possibly pay it back, she is determined to pay it forward as best she can.

Sincerely,

Sue

Read the original story & updates directly on Go Fund Me

Elisabeth's Story, told by Sue "Chef" Chaitin

This is my friend Beth. I met her 4 years ago through work.  At the time I didn’t know much about her.  All I really knew was that she had an amazing career as an opera singer in New York City and is now a successful writer.  She struck me right away as an honest, smart and fun person with whom I knew I would get along. She is superbly intelligent and witty. I love being with her because she never judges, she is warm, gregarious, curious, loving, and the best friend anyone could ask for.

 As time went on, I noticed some peculiar absences in our communication and I wondered why. We would call or text regularly, and then she would just drop of the face of the earth for weeks. As time went on and as she and I became closer, I learned that Beth was keeping a secret. Many of you reading this, who know Beth, may not realize the secret, because she is very good at disguising it.

My friend Beth has suffered from complications from Lyme disease for over 20 years. In fact it was so severe she could no longer perform and had to abandon the years of hard work, study and practice; and end her accomplished singing career.

Beth has been reluctant to tell her story for fear of being judged or labeled! You see, not much is understood about Lyme disease, and her story started out with many misdiagnoses: from M.S. to tumours, to the flu, to "its all in your head, sweetheart." It took enormous will and courage for Beth to fight back against the medical apathy she encountered and to continue to hunt for the reasons why her body was failing her. She went from doctor to doctor, getting sicker and sicker, until a friend encouraged her to go directly to an immunologist / infectious disease specialist.  She was so ill, she could hardly walk and almost didn't make it to the cab, let alone her appointment.  The immunologist was the first to understand the severity of her condition, and knew what to test for. The physician asked her to sit down because there would be bad news. Beth found out that she had an infection in the central nervous system which could kill her within a couple of weeks. She might survive if she took some immediate steps.  She took those steps, fought to stay on this planet, and had to radically change her life to do so. We now know that this infection is often related to Lyme Disease - the two diseases can work in tandem by suppressing the immune system, and the CNS infection most likely opened the door for the Lyme. She had loved to hike, and at some point must have been bitten by a tick, but didn't know it. This frustrating medical journey has led to long debilitating periods where she could hardly lift her head, and which still rob Beth of the ability to function on a daily basis in a way that we all take for granted.

As I have educated myself about Lyme Disease, I cannot imagine how Beth continues to soldier on as she does. While many can recover from Lyme with immediate intervention, some people end up with a chronic, devastating illness, with sometimes invisible, but far reaching complications.

If you want to get a good feel for what it’s like to live with chronic Lyme disease I suggest you watch the following video journal of another person who suffered in a similar way: https://youtu.be/So2K68r8pOY

The fact is, Lyme disease is as serious as cancer or heart disease, but it is not taken seriously by much of the medical community nor by insurance companies.

Beth’s complications continue to worsen. She is reacting to most foods, and can't be in the room with even a trace of certain perfumes, air fresheners or detergents because she has developed serious allergies to chemicals in them. Right now, she is getting necessary IV and supplemental treatment that is helping her function until she can get more comprehensive testing and accurately targeted treatment. Without any treatment, or if she has to skip them because of lack of funds,  she has episodes where she cannot get out of bed for weeks with terrifying symptoms. She has been temporarily and partially blind and paralyzed; has had weakness in the muscles that difficult or impossible to walk, and can get muscle spasms so terrible it stops her breathing; her heart and lungs get distressed, she has tremors, palpitations, nausea, fever, fatigue, body aches and pains that make even rolling over or normal movement feel impossible. It has cost Beth between $20,000 and $40,000, depending upon the severity, just for out-of-pocket medical expenses every year. This has been financially and emotionally, as well as physically devastating. Beth is not a victim. This has been a convergence of very difficult circumstances that are simply overwhelming.

You can read more about some of the complications of misdiagnosis here: http://www.forbes.com/sites/judystone/2015/09/04/lyme-deaths-from-heart-inflammation-likely-worse-than-we-thought/#db29d6e4d81b


There is good news, however. There has been advancement in treatment for Lyme Disease and its companion infections, thanks to a rare group of physicians who have the right mix of skills and passion to help this overlooked community of patients. With the right medical testing and treatment, she can go into remission, help her immune system heal, and become strong and fully herself again. With the help of an expert physician in this complex disease, Beth still has a chance to have a very full life, and with proper management, never have to suffer like this again. However, she cannot let this disease progress any further and needs this help as soon as possible.

Insurance will not cover any of Beth’s medical bills because they consider Lyme to be difficult to catch, but easy to treat. As a result, they will only cover 30 days of Lyme Disease treatment (antibiotics), which will not work for someone who has been misdiagnosed for as long as she has been. There are multiple co-infections and complications from a missed Lyme diagnosis that can be life threatening, especially as the immune system breaks down. And her immune system is breaking down. I would hate for Beth to die because of lack of money and the humiliation she feels from this disease.  Therefore I have encouraged her to allow me to tell her story and to ask for your help.

I'm afraid if Beth continues in this way and does not get the medical attention that she needs, she will die.

 Although she has had help from a couple of wonderful physicians in the past, there are very few physicians with the training and knowlege for difficult Lyme cases. They are quite rare. Physicians need to be experts in infectious disease, as well as Lyme, and understand how antibiotics/drugs work with each type of infection - and how they don't work, and what to do about it. They need to understand how the delicate immune system is altered and how to bring it back into balance. They need to know exactly what to test for and how to read the symptoms for each co-infection, and there are a lot of those to choose from. The physician needs experience to know that the infections, some of which are similar to malaria, can get into every system in the body, including muscles, nerves,  joints, organs, heart, brain and gut - if left unchecked. Beth hasn't been able to find one of these experts local to her in Michigan. But, after much research and evaluation, she has found a physician/M.D. who can help. The medical facility is in Albany, New York, and is called the Stram Center for Integrative Medicine. It specializes in Lyme Disease and has proven to be a success with patients with long-term, complex issues who have suffered like Beth. Treatment is expected to be $32,000 over a two-four month period. Adding in her travel and temporary housing expenses, Beth will need $50,000 to make it feasible. Anything over that amount will be put toward future maintenance treatments that are  out-of-pocket for her. She had enough funding to make her first appointment on May 31, and is very positive about the help she will be receiving there.

Note: She originally had an appointment with another great doctor in Florida, but since the campaign began, heard many success stories about the protocol that this center was using so when an appointment with Dr Stram, M.D. opened up, she grabbed it. For updates on her progress, visit her GofundMe page.

Beth tends to focus on the needs of others, rather than her own. She also has a lot of pride, and does not want to ask for your money.  So I will! Please give whatever you can . . . if you can, to help Beth. Please help save a kind, loving, and talented woman who has so much to give.

CLICK TO CONTRIBUTE TO THE GO FUND ME CAMPAIGN

The GAPS Diet. A Nutritionist's Personal Story.

Brooke Kaufman, Balance Within Nutrition

Written by Guest Blogger, Brooke Kaufman, Holistic Nutritionist

I first learned about the GAPS diet when I ran into an in-depth interview of Dr. Natasha Campbell-McBride (the creator of the GAPS diet) on Dr. Mercola’s website. You can listen to the interview here.

Why I started GAPS

After listening to the interview I was intrigued, and what she was saying about the connection between gut flora and mental health and behavior all rang true to me, and mirrored what I had learned in my studies as a Nutrition Consultant. My interest was piqued, and so a couple of months later when I started noticing that “something just wasn’t quite right” with my digestive system, the GAPS diet came to mind. I started preparing myself and my kitchen to begin the intro phase of the diet using the on-line resources, but decided it would probably be wisest to go ahead and purchase the GAPS book and the corresponding cookbook, Internal Bliss. I wanted to make sure that I wasn’t missing anything essential in this carefully laid out, gut healing protocol.

Wondering what the GAPS diet is?  Read an introduction.

Healing Medicine for a Long-time Vegetarian

Luckily, I had gotten a pressure cooker from my mom for my birthday, because it is definitely a big help with implementing the GAPS diet, which requires that you pretty much constantly have a big pot of broth or soup cooking on the stovetop. I had never had or made bone broth before in my life. I had been a strict vegetarian for fourteen years, and was just beginning to experiment with adding some small amounts of high-quality animal protein into my diet. Normally, buying grass-fed beef bones and putting them in a pot on my stove would have been a very edgy thing for me…but this was no ordinary pot of bones. This was healing medicine that I was determined to cook up for my inflamed digestive system. There is something sacred and empowering about making medicinal food for yourself, and it is just as magical to make medicine for a loved one. It’s all about bringing the intention of love and healing into your kitchen.

Nourished Without Raw Greens?

I did the intro phase of the GAPS diet for a few weeks, and during that time felt more deeply nourished than I had ever felt in my life. I had to eat several times a day and was constantly making bone broth and soups/stews. I was amazed at how I could feel so nourished while eating absolutely no leafy greens, and eating nothing raw! In my previous way of eating and thinking, I truly felt that if I went even one day without a leafy green or a salad that I was seriously compromising my immune system, and missing out on much needed nutrition. While there is no denying the health benefits of eating leafy greens and raw fruits and vegetables, they are only beneficial to you IF you can properly digest and assimilate their nutrients.

When Can You Best Digest Raw?

Despite the naturally-occurring enzymes that plant foods contain that aid in digestion, some people still become uncomfortably bloated and gassy when eating these foods. Donna Gates, author of the Body Ecology Diet says, “The ancients were well aware that raw vegetables were difficult to digest; in Chinese Medicine, for example, it is well known that raw foods are best eaten by someone with strong “digestive fire.” A major cause of poor “digestive fire” is that our adrenals and thyroid are both poorly nourished and taxed by toxins and daily stress.”

Nourishing and healing the digestive system with gentle, easy to digest, soothing foods and probiotic foods is essential for health and the purpose and main goal of the GAPS diet.

What is Optimal Nutrition?  Perception Shift.

My Experience with the GAPS diet (along with my other experiences and research) completely shifted my ideas about what optimal nutrition really is. It helped me to tune in to what is truly nourishing for my unique body type and genetic predisposition. It was like pressing the “reset button” on my digestive system. After doing the intro diet for a few weeks, my bloating and burping symptoms after meals went away. I did experience some initial detox symptoms (low energy and some dizziness and nausea) for the first week, as bad bacteria in my intestines died off and released their toxins, and as I started to get the hang of the diet…keeping a nourishing soup on the stove at all times, I began to feel stronger and healthier than ever.

I was only able to do the introduction part of the diet for three weeks, and then I went on a road trip which pretty much took me right off the diet, though I did stay away from all grains, sugars, and processed foods.

Join Me & Elisabeth for a GAPS Diet Challenge!

I'll be giving it another "go" with Elisabeth Veltman, owner of The Tender Foodie & The Tender Palate, and with YOU during our GAPS Diet Challenge.  I want to help further heal and seal my gut, as well as help you.  If you are allergic to nuts, which is a big part of GAPS or are sensitive to other foods on the diet, we'll be offering custom phone calls and nut-free options for you.

 Here's how you sign up for the Challenge (click here)!

Or Just Sign Up for Our Upcoming Webcasts Separately!

June 14, 2013: The Gut / Brain Connection wtih Toni Fairman, NTP, Certified GAPS Practitioner

June 21, 2013: The Art of Supplementation & Detoxification

June 28, 2013: MINDFUL MEDITATION - Dealing w/Change & the Emotional Issues of Eating with Carol Hendershot, Mindful Meditation Instructor 

Why Many People Do GAPS

Doing the GAPS diet for many people is motivated by their desire to help heal their child’s digestive and/or behavioral issues. For parents doing the diet for and alongside their child, I applaud you and admire your willingness to take the health of your family into your own hands. Although it is not easy at times, dedicating several weeks or months to healing is a small price to pay in comparison to years of struggling with illnesses and disorders for which the western medical doctors have no cures for; only prescription medications that are temporary surface solutions to underlying long-term issues. There are resources and solutions in the GAPS diet book, and on-line for strategies to successfully do the diet with your child.

How I Got Started

1. BUY THE BOOK & RECIPES

Whether you decide to do the diet on your own, work with a GAPS Practitioner, or join our virtual support group (The GAPS Challenge), its really essential to buy the book and read it. Our challenge helps break down the more difficult concepts of the book, and helps guide you through the gobs of information the book provides, but there is no substitute for using the book as a reference.

2. GET A PROBIOTIC

The first thing I did in preparation to begin the GAPS Introduction diet, was to go to my naturopathic doctor’s office and purchase a medical grade probiotic supplement. It was a little pricey (around $40 for a month’s supply) but definitely worth it. Some people advise that if you have severe digestive issues, to wait till you’ve completed the intro phase of the diet to begin taking the probiotic. I decided to begin taking it right away, though began with only one pill a day and didn’t increase to two pills per day for a couple of weeks.

Read "Hidden Allergens Abound in Supplements & Medication" (If you are really sensitive / allergic to dairy, see recommendations in the article)

3. MAKE A GROCERY LIST

The next thing I did was make a grocery list of the foods that I would need to buy at the store to keep myself properly nourished. The list of ingredients was short (there’s not much you can eat during this phase), and I seriously underestimated the quantity of food I would need to buy, which was fine because I prefer to shop frequently anyway for meats and vegetables so that my ingredients are always fresh.

4. DOWNLOAD A MEAL PLAN

To help make life a lot easier, use a meal plan. I've created & curated a meal plan for 3 weeks during the challenge for your GAPS intro diet adventure. We'll post a few recipes along the way for everyone to try, as well. Start with the bone broths below.

5.  MAKE BONE BROTH

Then I began making a big pot of bone broth. This was my first adventure into the world of bone broth, which I found to be quite fascinating. I was taught in my nutrition studies how deeply nourishing bone broths were, especially for those who are recovering from serious injury or illness. I found a way to make a rich bone broth that was very palatable to my tastes (smooth, rich and not too strong of a meaty flavor). You can see the recipe here.

You can find more information on how to do the introduction to the GAPS diet here: http://www.gapsdiet.com/INTRODUCTION_DIET.html

Once you are going strong on the Introduction phase of the GAPS diet, you can begin to test more GAPS-approved foods. To test a food before introducing it to the diet, do the Sensitivity Test.

Here are some bone broth recipes:

Nourishing Bone Broth (pressure cooker)

Nutrient Rich Beef Bone Broth (slow cooker / crock pot)

Tip: Roast Your Beef Bones Before Making Broth

6.  DO SELF-SENSITIVITY TESTING

Take a drop of the food in question (if the food is solid, mash and mix with a bit of water) and place it on the inside of your wrist at bedtime.  Let the drop dry on the skin, then go to sleep.  In the morning check the spot: if there is an angry red reaction, then avoid that food for a few weeks, and then try again.  If there is no reaction, then go ahead and introduce it gradually starting from a small amount.

If there is no symptom with the sensitivity test, then you continue to introduce more and more foods from the list of allowed foods, until you are doing the full GAPS diet. A list of allowed foods can be found here: http://www.gapsdiet.com/The_Diet.html